Lobbying and Campaigns
The AF Association is a UK registered charity which focuses on raising awareness of Atrial Fibrillation (AF) by providing information and support materials for patients and medical professionals involved in detecting, diagnosing and managing Atrial Fibrillation.
The AFA campaigns to:
1) Provide support and information on Atrial Fibrillation to those affected by the condition.
2) To advance the education of the medical profession and the general public on the subject of Atrial Fibrillation.
3) To promote research into the management of Atrial Fibrillation.
To ensure that AF is at the heart of the healthcare debate, we run a series of high profile campaigns and events to better raise awareness of the importance of effective treatment and diagnosis of AF.
Commissioning Board reviewing guidance on AF procedure
At the AF Association All Party Parliamentary Group for AF (APGAF) in December 2012, we discussed 'access to therapy for AF'. We were joined by patients, carers, professionals from across the healthcare community, commissioners, MPs and Lords.
It transpired that there was an inequality of access to NICE recommended therapies resulting in healthcare provision across England and Wales still falling into a 'postcode lottery'.
In May 2012, the Department of Health (DoH) said:
"No decision about me without me...means giving patients and service users the opportunity to share in decisions about their care all along the pathway".
However, in December of the same year, access to therapies for atrial fibrillation came under threat from commisioning restrictions.
The AF Association believes access to therapies for AF should be appropriate to the individual's health needs and equal across all health trusts.
We asked for your support to campaign against this in February 2013. Following the high number of responses from patients, carers, healthcare professionals, MP's and service providers, to the Specialist National Commissioning Board (SNCB) regarding the published draft statement on commissioning for LAAO, the AF Association has been contacted by the Board and reassured that all responses received, whether on line or by post, will be included in the planned review of this statement.
A date has not been published yet for the review, but the AF Association has been reassured that they will be invited to be part of the stakeholder committee and comments to include the patient perspective, will be heard.
The AF Association welcome this involvement and indication that the draft statement is to be reviewed, and will share further updates with you as soon as the date for the meeting has been set and further information known.
Pulse in Parliament
As part of its activities associated with the World Heart Rhythm, AFA hosted an MP photo opportunity in to raise awareness of AF amongst policymakers and promote opportunistic pulse checks as one of the most cost-effective ways of detecting AF.
During this event, over 30 parliamentarians had a photo taken with Trudie Lobban MBE, our chief executive, checking their pulse and were encouraged to issue local press releases to raise awareness of opportunistic pulse checks.
Pulse checks in the NHS: Ideas worth spending
This report was produced by the AF Association as a result of the Healthcare Pioneers publication. It was discussed at an All-Party Pariamentary Group (APGAF) meeting to highlight the importance of pulse screening to detect AF.
ACT on AF Friday
On Friday 28th October 2011, the AFA held an event which encouraged patients, clinicians and policy-makers to spread innovative practice across the NHS, as featured in the AFA’s newly published Healthcare Pioneers: Showcasing innovative practice booklet, details of which can be found here.
Act on AF Friday encouraged parliamentarians, patients and clinicians to write to the Department of Health to showcase examples of innovative care and to ask them to introduce a early quality standard. On ACT on AF Friday the AFA launched a campaign to:
ASK if your local commissioners have a strategy on AF
CASE studies – promote the AFA’s Healthcare Pioneers booklet which highlights innovative practice on AF across the NHS
TELL the Minister that AF must be prioritised and an early Quality Standard is urgently needed (in England)
Contact your MP
We encourage AFA supporters to contact their MP to highlight the importance of treating and diagnosing AF and should you wish to do so you can contact your members here.