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Patient Support Groups

Information and support groups form an invaluable service to arrhythmia patients. Meetings present a forum for patients, their carers, friends and families to gain information, emotional support, share common experiences and learn more about their condition.

To this end, AFA is working with patients, carers and medical professionals to help establish local AF Patient Support groups which are supported through affiliation to the Arrhythmia Alliance - The Heart Rhythm Charity, to which AFA is affiliated (www.heartrhythmcharity.org.uk).

To find out more about setting up a local AF Patient Support Group, affiliation and how AFA can help, click here.

 

Location Support Group
Bournemouth AF Support Group

Bournemouth and Dorset Patient Support Group

For further information and to register your interest, please contact, please contact Daisy Harris or telephone 01789 867528

Bradford Arrhythmia Support Goup

Launched in 2012 and led by local GP Dr Matthew Fay, Meetings are held at Westcliffe Medical Centre, Westcliffe Road, Shipley, Bradford, BD18 3EG.

For directions, click here.

For further information about the group or to register your interest, please contact Daisy Harris or telephone 01789 867528.

Brighton and Hove

Launched in June 2011 and jointly run by the arrhythmia nursing team from Royal Sussex County Hospital and local volunteers, new members are welcomed to share news, support and information.

For more information, please contact Daisy Harris or telephone 01789 867528

Gloucestershire Arrhythmia Support Group

Next meeting: 2-4pm 19 August 2014
Venue: St Pauls Medical Centre, 121 Swindon Road, Cheltenham, GL50 4DP

Tuesday 29 April 2014

The first Gloucestershire arrhythmia support group took place on Tuesday 29 April 2014 at St Paul’s Medical Centre in Cheltenham. The meeting was very well attended by 20 patients/carers.
Daisy Harris from Arrhythmia Alliance started by introducing the meeting and explaining the reasons for the group. Daisy then handed over to Dr Richard Williams who gave a very informative and engaging presentation. Dr Williams started by explaining what atrial fibrillation is and explaining what happens to the heart through a diagram.

The group then took a short break which allowed patients to have a chat and share some experiences with each other. Patients were also able to take have a look and take some information leaflets and booklets.

Dr Williams then went on to discuss the treatment options for atrial fibrillation, problematic thoughts and pulse checking. Dr Williams kept all the attendees very intrigued in what he was discussing.
Once Dr Williams had finished his presentation attendees were able to ask any questions and more discussion then went on regards to their personal experiences.

Over all the meeting was a great success and we hope to hold the next meeting in August time but is yet to be confirmed.

If you have any feedback on the meeting or would like to put your thoughts forward for topics of conversation in the next meeting, please contact Daisy on 01789 867528 or email communications@heartrhythmcharity.org.uk

Hampshire Arrhythmia Support Group Contact: Daisy Harris
Email: communications@heartrhythmcharity.org.uk
Tel: 01789 867528

Next Meeting: TBC
Venue: Andover War Memorial Hospital, Charlton Road, Andover, SP10 3LB

Established in October 2013, Andover Patient Support Group is open to arrhythmia patients and their carers.

Summary of talks from lthe last meeting- 11 June 2014

Dr Rose explained the role of the Clinical Commissioning Groups which replace Primary Care Trusts. West Hampshire CCG is responsible for distributing apx. £800M NHS funds to service the needs of 540,000 population through hospitals, community medical staff and mental health services. GP’s and their services are funded separately.

Philippa Darnton explained her role as Commissioner with particular responsibility for long term conditions, including all cardiovascular conditions. She works with healthcare professionals to formulate services and to ensure these are delivered and monitored. Philippa is looking at the management of AF treatments through improved identification and awareness and welcomed patient feed back. Tele health is one area for future development in order to reduce hospital admissions.

If you would like to read in more detail please click here

The next meeting is planned for late November and attendees are asked to help pass on details of this group to others who might benefit.


If you would like to give your feedback on the meeting or if you would like to suggest topics of discussion for the following meetings, please do not hesitate to contact us.

Northern Ireland

Please contact Daisy for further information.

Southampton

If you would like to join the group and would like to know more about a particular subject, please contact Daisy Harris on 01789 867528

Sheffield

Launched in May 2011, the arrhythmia team at the Northern General Hospital are delighted to welcome new members to the Sheffield Palpitation Patient Support group.

For more information about the why this group was formed click here

In the news

Meetings are held in the Medical Education Centre in the hospital grounds from 10.00 - 12.00.

For directions click here
 
Future meetings will be held on the following dates:

2014 meeting dates:

  • Wednesday 1 October
  • Wednesday 3 December

For further information or to register your interest, please contact Daisy Harris on 01789 867528 Alternatively, contact 0114 2269064 to check the date for each session as these are subject to change.

Surrey Arrhythmia Support Group


Next Meeting: 16:45, 10 September 2014
Venue: Post Graduate medical Centre at Epsom General Hospital

The Surrey Arrhythmia Patient Support Group was established in June 2014.


The first meeting was held on 16 July 2014. 35 patient/ carers attended and received an excellent presentation on Atrial fibrillation from Dr Richard Bogle, Consultant Cardiologist from Epsom and St Helier Hospital (medical lead).

Patients then shared their experiences and were able to ask Dr Bogle about their varied conditions.

The next meeting is at 4.45pm on September 10th and will be held In the post Graduate medical Centre at Epsom General Hospital. Our speaker will be Liz Clark who the Lead Commissioning Pharmacist for Surrey Downs CCG Medicines Management Team and her talk will be on anti-coagulation.


The medical lead for the Surrey Arrhythmia Support Group is Dr Richard Bogle, FRCP FESC FAAC DHMSA PhD Consultant Cardiologist and Clinical Lead for Cardiology at Epsom and St Helier Hospital Trust. He undertakes all aspects of adult general and interventional cardiology.


We also have a public lead: Jane Race and a patient lead: Rosemary Najim, if you would like to book your free place or find out more please email info@surreyASG.co.uk or call 07986564651

You can also visit the website here Surrey Arrhythmia Support Group

Torbay

Meeting up to six times per year, the South Devon Arrhythmia Support Group is run by both patient members and the arrhythmia nursing team based at Torbay Hospital.

There is a £2 entrance fee, however this and the proceeds from the raffle and teas and coffees are fed back into the group.

Meetings are held at the Salvation Army Hall, Market Street, Torquay from 7.30pm - 8.30pm. For directions, click here

 For further information or assistance, please contact Daisy Harris or telephone 01789 867528.

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