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Patient Support Groups

Information and support groups form an invaluable service to arrhythmia patients. Meetings present a forum for patients, their carers, friends and families to gain information, emotional support, share common experiences and learn more about their condition.

To this end, AFA is working with patients, carers and medical professionals to help establish local AF Patient Support groups which are supported through affiliation to the Arrhythmia Alliance - The Heart Rhythm Charity, to which AFA is affiliated (www.heartrhythmcharity.org.uk).

To find out more about setting up a local AF Patient Support Group, affiliation and how AFA can help, click here.

 

Location Support Group
Bradford Arrhythmia Support Goup

Launched in 2012 and led by local GP Dr Matthew Fay, Meetings are held at Westcliffe Medical Centre, Westcliffe Road, Shipley, Bradford, BD18 3EG.

Next meeting:
Thursday 4th June 10-12 and 2-4 - Aarrhythmia day at Shipley Library, not Westcliffe Medical Centre

We have coming, Hale, Carers resource(pm only) and healthy hearts.
Literature available form both AFA and Arrhythmia Alliance.
We also have demonstration/participation in emergency first aid, ie what to do to keep someone alive until help arrives, and how to use a defib.
Both the Medical and Patient lead will great everyone and offer a heart rhythm check with the rhythm stick.
There will also be a tea and coffee stall run by the group.

Upcoming meetings:
Thursday 24th Sept 2-4pm - first aid

Venue: Westcliffe Medical Centre, Westcliffe Road, Shipley, Bradford, BD18 3EG.

Thank you to each of the 37 attendees at our previous meeting on 18th October 2012. Topics included symptom management and prognosis advice.

Aims and Objectives:
* To provide local people with support and advice about their condition
* To provide a forum for patients and carers to share ideas and experiences
* To provide accurate information
 

For directions, click here.

For further information about the group or to register your interest, please contact Sarah Edmunds or telephone 01789 867529.

Derby, Wirksworth Support Group

Launched in October 2014 and run by Patient Lead Carl Mcdonagh.

NextMeeting
:TBC
Venue:TBC
Guest Speaker: TBC

The last next meeting of the AF Support Group on Monday 23rd March was a great success with over 30 people in attendance including medical professionals from the Medical Centre.

We had an excellent presentation from our guest speaker Charlotte Aldridge who is a British Heart Foundation Arrhythmia Nurse Specialist.Charlotte is based at Bartholomew's Hospital London. This is a teaching hospital and a centre of excellence for the treatment of AF under Professor Schilling.

Charlotte gave a presentation on AF, it's causes, symptoms and treatments. She also took questions and gave expert answers, directions and advice on how to manage AF. It was great opportunity for all those in attendance to learn more about their AF, the drugs they have been prescribed and how best we can all safely live with AF or seek out specialist treatment through an Electro Physiologist.

It was agreed how it is so important to have a single point of contact through someone like a ANS to get expert advice in person/ over the phone. How a ANS can offer the person and their family support and guidance throughout the treatment of their AF/arrhythmia, giving patients the appropriate information about their condition and how best it can be managed.

We plan to hold our next meeting early July 2015.

Please contact Sarah on 01789 867529 or email s.edmunds@heartrhythmalliance.org
 

AF Association Gloucestershire Support Group

Next meeting:TBC
Venue: TBC

The AF Association Gloucestershire Support Group is currently in the process of securing a new medical lead for the support. The website will be updated as soon as we have secured a lead and arranged the next group meeting. If you have any suggestions on a medical lead, please do share your thoughts.

Tuesday 2 December 2014

The AF Association Gloucestershire Support Group met again on 2nd December for an informative and well attended meeting of patients and family members. Our medical lead, Dr Richard Williams, spent time answering a variety of questions about different types of heart rhythm disorders and appropriate medication and treatments, which people said they found very helpful, and also gave a brief insight into the various structures of primary and secondary care available within the NHS now.

Unfortunately this was the last meeting Dr Williams was able to be part of, and we are very grateful for all the support and advice he has given to the group over the last year, since our first meeting back in April, and will miss his enlightened approach and sense of humor. It is hoped that a new medical lead will soon be found to head the next meeting of the group sometime in 2015.

Afterwards there was time for everyone to get together over refreshments and share their experiences and get to know one another better. This is an important part of the meetings, which bring together people who may otherwise have little or no contact with others who understand how heart rhythm disorders affect them and those close to them, and how invaluable this support can be.


A huge thank you to our patient lead, Kate Gegg and of course our medical lead Dr Richard williams for their efforts and time toward organising of the Gloucestershire Support Group.

If you have any feedback on the meeting or would like to put your thoughts forward for topics of conversation in the next meeting, please contact Sarah on 01789 867529 or email s.edmunds@heartrhythmalliance.org

Hampshire Arrhythmia Support Group Contact: Sarah Edmunds
Email: s.edmunds@heartrhythmalliace.org
Tel: 01789 867529

Next Meeting: TBC
Venue: TBC

Established in October 2013, Andover Patient Support Group is open to arrhythmia patients and their carers.

Wednesday 22 April 2015

Speakers: Dr Dominic Kelly, Consultant Cardiologist, Basingstoke Hospital
Dr Chris Arden, GP Clinical Lead for Cardiology, W.Hants CCG
Neil Hardy, Medicines Management Lead, W.Hants CCG

To read a full write up, please click here             


If you would like to give your feedback on the meeting or if you would like to suggest topics of discussion for the following meetings, please do not hesitate to contact us.

Liverpool AF Support Group

Established in January 2015 the Liverpool AF Support Group plans to provide support and advice to patients suffering from AF and their carers. It will also allow patients to share their experiences and listen to others.

Contact: Sarah Edmunds
Email: s.edmunds@heartrhythmalliance.org
Tel: 01789 867529

Next Meeting: Saturday 13 June 2015 14:00 - 15:30
Venue:
Liverpool Heart and Chest Hospital, Thomas Drive, Liverpool, Merseyside, L14 3P
Topic:
Chemical and Electrical Cardioversion. Key speaker Rebecca King

Wednesday 29 April 2015

A great turn out for the first meeting, about 15 patients and relatives attend and a few health care professionals.

Dr Gupta came to the opening of the group and gave an introduction to risk factors in AF.
Jennifer Currie gave an excellent introduction to her patient journey and Rebecca King introduced the mechanism and treatment options behind AF.

Future Meeting Dates:
Saturday 13 June
Tuesday 21 July
Saturday 5 September
Thursday 22 October
Saturday 9 January

If you would like to give your feedback on the meeting or if you would like to suggest topics of discussion for the following meetings, please do not hesitate to contact us.

Sheffield

Launched in May 2011, the arrhythmia team at the Northern General Hospital are delighted to welcome new members to the Sheffield Palpitation Patient Support group.

For more information about the why this group was formed click here

In the news

Meetings are held in the Medical Education Centre in the hospital grounds from 10.00 - 12.00.

For directions click here
 
Future meetings will be held on the following dates:

2015 meeting dates:

  • Tues 7th April ‘ Speaker – Local GP Alastair Bradley – ‘ Role of GP in the diagnosis and treatment of AF’
  • Tuesday 9 June 2015 - Consultant cardiologist Dr Chico – ‘Cardiology research’

For further information or to register your interest, please contact Sarah Edmunds on 01789 867529 Alternatively, contact 0114 2269064 to check the date for each session as these are subject to change.

Surrey Arrhythmia Support Group


Next Meeting: Wednesday 6 May 2015, 4:45pm-7pm
Speaker: Dr Yousef Daryani, Consultant Cardiologist at Epsom Hospital speaking about Imaging the heart with ultrasound and MRI.
Venue: Post Graduate medical Centre at Epsom General Hospital

The Surrey Arrhythmia Patient Support Group was established in June 2014.

Surrey Arrhythmia Support group had an excellent talk, on Wednesday 7th January, on Cardioversion, from Raj Mungar, who is the British Heart Foundation Arrhythmia Nurse who now organises the Nurse Led Cardioversion service at Epsom and St Helier hospital.
We learned a lot about the various heart arrhythmias and their treatment and gained a good , in depth knowledge of Cardioversion, its risks and where it is a suitable treatment for patients.


The medical lead for the Surrey Arrhythmia Support Group is Dr Richard Bogle, FRCP FESC FAAC DHMSA PhD Consultant Cardiologist and Clinical Lead for Cardiology at Epsom and St Helier Hospital Trust. He undertakes all aspects of adult general and interventional cardiology.

We also have a public lead: Jane Race and a patient lead: Rosemary Najim, if you would like to book your free place or find out more please email info@surreyASG.co.uk or call 07986564651

You can also visit the website here Surrey Arrhythmia Support Group

Read more about the group's involvement in shaping AF services within Surrey by clicking here.

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